Founded in 2008 in Ann Arbor, Michigan, Active Against ALS is a grassroots, nonprofit 501(c)(3) organization whose mission is to raise funds for research toward effective treatments and ultimately a cure for ALS (Lou Gehrig’s Disease). We are focused and dedicated to increasing awareness of the disease, encouraging physical activity, and building a compassionate community.
​Together, we are Raising Funds & Raising Hope.

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​Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease or Motor Neuron Disease (MND), is a neurodegenerative disorder that attacks motor neurons in the brain and spinal cord. For reasons that are not completely understood, motor neurons die and the brain can no longer control muscles or signal them to move. A person with ALS typically loses the ability to use their hands, legs, voice and respiratory system.  In most cases, the mind remains unaffected. ALS is not rare; 350,000 people have it worldwide, and approximately 1,000 have it in Michigan. People live on average two to five years following diagnosis. It is a devastating diagnosis, and currently there is no cure or effective treatment for ALS.

Active Against ALS provides a compassionate community to help build awareness and support for research for one of the most devastating diagnoses you can get. Our family has been inspired with the incredible efforts of so many who have been touched by the disease but also who want to find a cure for this awful disease. You have truly made a difference to Maddie, Sophie and me -- and gave Bob hope for 13 years! 
​Gretchen Spreitzer - wife of Bob Schoeni