NATIONAL RESOURCES

While we are very honored to be a local Michigan ALS organization, we are not the only ones who are fighting against ALS. To aid in your knowledge and research, you may find these additional sources to be helpful. ​
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• ALS Association
• ALS Therapy Development Institute
• ALS News Today
• ALS Treatment
• ALS Pathways
• ​I AM ALS
• ​Live Like Lou

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ALS & Frontotemporal Dementia (FTD)
A significant percentage of people diagnosed with ALS also show cognitive impairment in the form of personality changes, obsessions, inappropriate social conduct, poor decision making, loss of empathy and deficits in an ability to communicate which can be hallmarks of Frontotemporal Dementia (FTD). FTD is likewise a neurodegenerative disorder, but unlike Alzheimer’s or other dementias, the first changes are in behavior or use of language while the individual’s intelligence remains largely intact. If you notice any of these changes in an ALS patient, speak to your neurologist. Also know that the Association for Frontotemporal Dementia has resources including support groups that can answer questions for persons with a dual diagnosis and their caregivers.

ALS has been in the spotlight and we are here to share! Click on each link to learn more. 

• CBS News:
  • Fighting the good fight against ALS
• ​Michigan Medicine Publication:
  • Drawing a tube of blood could assess ALS risk from environmental toxin exposure
• On with Kara Swisher - Podcast:
  • ​Dan Doctoroff on Living with ALS and Building the Future
• Pro Football Hall of Fame 2024 inductee:
  • Steve McMichael and ALS

"I am truly honored to be the recipient of the Robert F. Schoeni Award for Research. Thanks to the support from Active Against ALS, I can continue my studies focused on the possible involvement of gene fusion events in ALS. The success of these studies will be incredibly useful for understanding novel pathogenic mechanisms in ALS and, importantly, will allow us to identify novel potential therapeutic targets for the treatment of this devastating disease."
- Tiziana Petrozziello, PhD
Harvard Medical School & Mass General Hospital