$1,200,000 awarded for ALS research
INNOVATE. COLLABORATE. HOPE.
Active Against ALS is proud to announce that starting in 2026, we will be partnering with the Robert Packard Center for ALS Research at Johns Hopkins, “The Packard Center,” to award research grants. Their mission is to empower collaborative and breakthrough research that advances the fundamental understanding of ALS by engaging and supporting the global research community. With 25 years of experience, The Packard Center will
help us expand our reach of scientists focused on ALS. And, they will match our donation one for one! Now our $50,000 grant will become a $100,000 grant with their partnership. Our $100,000 grant will become $200,000. Additionally, many of our SAB members are also scientific advisors to the Packard Center so we will maintain continuity with our research goals. Active Against ALS is extremely excited about this opportunity!
help us expand our reach of scientists focused on ALS. And, they will match our donation one for one! Now our $50,000 grant will become a $100,000 grant with their partnership. Our $100,000 grant will become $200,000. Additionally, many of our SAB members are also scientific advisors to the Packard Center so we will maintain continuity with our research goals. Active Against ALS is extremely excited about this opportunity!
The Robert Packard Center for ALS Research at John Hopkins
Since its founding in 2000, the Robert Packard Center for ALS Research at Johns Hopkins has remained the only international scientific operation dedicated solely to curing ALS, a motor neuron disease also known as Lou Gehrig’s Disease.
Under the leadership of its director, Dr. Jeffrey Rothstein, Packard’s approach is unique in that they combine real scientific collaboration and research with fundraising for the development of new treatments. Through genius, courage and action, the Packard Center is bringing hope to ALS patients and families.
The Packard Center funds highly innovative scientific research – focusing on innovation, collaboration and results.
To date, the Packard Center has awarded more than $23 million in research grants, two-thirds of which have funded projects at institutions outside of Johns Hopkins.
Under the leadership of its director, Dr. Jeffrey Rothstein, Packard’s approach is unique in that they combine real scientific collaboration and research with fundraising for the development of new treatments. Through genius, courage and action, the Packard Center is bringing hope to ALS patients and families.
The Packard Center funds highly innovative scientific research – focusing on innovation, collaboration and results.
- Packard investigators are chosen after a highly selective, invitation-only grant process.
- Each investigator and grant is closely monitored to ensure compliance and reporting is completed on a timely basis.
- Investigators are held to a high-standard and are required to monthly meetings throughout the year. These meetings are required brainstorming sessions where grantees, advisors and colleagues share ideas and critique one another’s work.
- Each spring, the Center’s annual symposium provides an opportunity to bring all of the investigators together to share their research summaries and listen to guest lectures.
To date, the Packard Center has awarded more than $23 million in research grants, two-thirds of which have funded projects at institutions outside of Johns Hopkins.
Active Against ALS
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