We’re thrilled to share an exciting opportunity for individuals to participate in NIH-funded observational ALS research. The ALL ALS Consortium is dedicated to advancing our understanding of ALS through 2 key studies: ASSESS and PREVENT.
The ASSESSALL ALS study is currently enrolling people living with ALS, as well as “control” participants - often family members, caregivers, and friends.
The PREVENT ALL ALS study is enrolling individuals who are genetically at risk of developing ALS.
The main objectives of these studies are to increase access to research among the ALS community by providingremote enrollment options, strengthen community engagement, and redefine how clinical progression is measured to ensure it reflects what matters to those living with ALS.
The program has plans to build and maintain 2 connected central repositories to store the largest collection of ALS-related clinical data and biological samples. These resources will be shared with researchers to accelerate scientific discoveries and the development of more effective ALS treatments.